Patient and Public Involvement
Public involvement in research is where the research is carried out ‘with’ or ‘by’ members of the public rather than‘to’, ‘about’ or ‘for’ them.
We use the INVOLVE definition of ‘public’ which includes patients, potential patients, carers and people who use health and social care services as well as people from organisations that represent people who use services.
It is essential that the public are actively involved in the planning and reviewing of NIHR funded research activities. In our research, public representatives are involved across all stages of the NIHR Leeds MIC process, illustrated below.
We would like public representatives to be involved in NIHR Leeds MIC activities to:
- help set research priorities
- improve quality by addressing the patients point of view
- identify important questions that health and social care research needs to answer
- give their views on research proposals alongside clinicians, methodologists, scientists, and public health and other professionals
- help assess proposals for funding
- take part in clinical trials and other health and social care research studies, not just as participants but as active partners in the research process
- publicise the results of NIHR Leeds MIC activity.
The aim of the NIHR Leeds MIC is to work closely with healthcare professionals, academics and industry partners to improve processes for IVD development, generate high quality research evidence and ensure the most effective diagnostics tests are progressed into clinical care.
Ensuring that patients and the wider public are involved in these activities is a key priority for the NIHR Leeds MIC. Patients and the public bring a wealth of experience and provide valuable perspectives on the way diagnostic tests are developed. The below engagement strategy has been developed and approved by the NIHR Leeds MIC Patient and Public Involvement and Engagement (PPI/E) group.